Genome editing in the spotlight: genetic disorder carriers' views shape the conversation Nature VUamsterdam genomeediting genome editing conversation geneticdisorder
By Neha MathurAug 8 2023Reviewed by Lily Ramsey, LLM In a recent article published in Natures Humanities and Social Sciences Communications Journal, researchers performed a qualitative study in the Netherlands to explore value-laden perspectives of the carriers of an autosomal dominant genetic disorder on the applications of somatic genome editing and human genome editing .
Also, as scientists alone cannot address moral and societal questions concerning HGE, it is vital to consider the 'worldviews,' i.e., the human ability to reflect on existential questions beyond religious and secular frameworks, of people affected by genetic disorders when using HGE. Then, they performed 50-80 minutes semi-structured interviews between April and June 2019 to explore their views on HGE and SGE.
Regarding the safe use of SGE, participants were positive irrespective of disease severity as long as it was medically safe and effective; likewise, most participants were positive towards HGE use but only for severe genetic conditions.
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