A woman with a rare disorder meaning her skin grew too fast for her body has died aged 32.
Hannah Betts, 32, was an ‘inspiration’ with her positive attitude to the ultra-rare condition that she lived with from birth.Hannah, from Great Yarmouth in Norfolk, was born with Harlequin ichthyosis which causes the body to make too much skin.Her sister Lucy Betts, 35, who has the same condition, said: ‘I still don’t think I can believe she’s gone‘It’s a very big rollercoaster of emotions. It’s really hard.
Harlequin ichthyosis is an incurable genetic condition that results in thickened skin over the entire body. It affects around one in 300,000 people.Hannah Betts with dad Clive and mum Jan Lucy said that she and Hannah had to carry out strict daily routines to stop their skin from cracking. This included morning baths to soak in before rubbing off an excess layer of skin, as well as moisturising throughout the day.‘We went through a lot together that we couldn’t explain to anyone else. I knew exactly how she felt.‘We were so lucky to have her in our lives. She made everything so much better.‘I’ll always remember her smile. She was so loving – she loved with her whole being.
Brasil Últimas Notícias, Brasil Manchetes
Similar News:Você também pode ler notícias semelhantes a esta que coletamos de outras fontes de notícias.
Sisters abandoned in hospital toilet are reunited 32 years laterTwo sisters have been reunited decades after they were abandoned by their mum in hospital toilet cubicles.
Consulte Mais informação »
Woman claims that Johnny Depp is the father to her child during trialThe unidentified woman's outburst came during a break after Judge Penney Azcarate left the courtroom. 'Johnny, I love you! Our souls are connected,' the woman exclaimed.
Consulte Mais informação »
US woman Elizabeth Line jokingly thanks Queen for attending Crossrail openingElizabeth Line also joked of being a ‘celebrity’ when the roundel for Crossrail was unveiled in 2016
Consulte Mais informação »
Death of woman with epilepsy may be re-examined after Diane Stewart caseExclusive: mother of Emily Whelan hopes tests that helped prove Stewart was murdered may shed light on daughter’s death
Consulte Mais informação »