The U.S. still lags in research on benign breast disease—like cysts, scar tissue and tumors—because it’s seen as “a woman’s disease.”
in 2022. Endometriosis, an inflammatory condition of the uterus, is estimated to impact the same proportion of women as diabetes, which receives much more funding.in Congress, citing gendered disparities in research on Alzheimer’s disease, rheumatoid arthritis and coronary artery disease.
For Kennedy, the combined stress of losing her mother and having “a potential life-altering diagnosis hovering over [her]” made it hard to concentrate on her work. Medical appointments, biopsies and surgeries can be costly. The years I had surgery were the years I spent the most out-of-pocket for healthcare, and in 2019, BBD patients spent $1,615There are also racial disparities with benign breast disease, just as there are with breast cancer.
Patient experiences are not a monolith, and we need more research on how these conditions develop and how we can address them. In addition to being beneficial for patients, more research will help avoid what clinicians call “overtreatment” and what health policy researchers call “low-value care,” which is health-care that has little benefit in the long run.
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