Following news about research that used data collected from Uighurs, scientific publishers want to create new consent guidelines. But it’s complicated.
from June with screenshots of the original paper. Now, it includes a line that reads, “The study was conducted with the approval of Dalian University and written, informed consent was obtained from each study participant who understood their photographs would be used for non-profit scientific research.”
I’ve submitted a handful of papers, all of which involved data from children, which ethics boards define as a “vulnerable population.” I’ve never been asked to submit any kind of evidence that I’d obtained the proper permissions from a research ethics review board, or for evidence that I’d gotten informed consent for each participant.
Plus, if journals are relying on ethics committee approvals, that’s hardly a uniform standard. The process for obtaining research approval varies widely from country to country. “Even if consent forms and ethical approval is available, editors should not systematically defer to the ethics committee decision,” says Moreau.
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