Turning over private medical data to giant tech companies might allow for unprecedented convenience — but it also opens up a Wild West of data sharing on the most intimate health care details for millions of Americans
The Trump administration's push to give patients more control over their health records could turn over a massive trove of very personal data to giant tech companies, app designers and data brokers.
The increased push to let both patients and providers more easily move and share health records has been championed by White House senior adviser Jared Kushner. The president's son-in-law has quietly helped craft the policy, which could upend the health technology sector and generate a windfall for Silicon Valley giants and startups alike.
The roiling privacy debate has reached within the administration, and concern within the Office of Management and Budget was one reason the rollout of the new rules was delayed, a government official and a second person familiar with the process said. Privacy hawks see an ironic threat: giving patients more control over their health data will ultimately result in them losing that very control. Once data is shared, privacy restrictions become looser, supercharging a burgeoning industry built on vacuuming up and reselling Americans’ medical information. Already, tech giants like Google and Facebook face renewed scrutiny on Capitol Hill over their use and protection of consumer data.
HHS declined comment for specific questions about its meetings with tech firms, though Don Rucker, director of the Office of the National Coordinator for Health Information Technology, who oversees health tech in the department, confirmed Feinberg’s visit in a January speech. “There’s a big alliance, because tech knows that the regulatory landscape either allows or stops clinical data movement,” said one official, who requested anonymity to describe one meeting between Apple and ONC. “Tech knows they own the consumer. If they can help government push regulation to help the patient/consumer, the game is over: tech wins.”
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