The Housing Challenges Facing People With Intellectual and Developmental Disabilities

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The Housing Challenges Facing People With Intellectual and Developmental Disabilities
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Despite the fact that over time, community-based alternatives can save states more money than large institutions, group homes aren't adequately financially supported. MsReads via JSchulmanHall

where her brother Matthew Smith , then 55, had been living for approximately one month. ICFs are supposed to provide comprehensive health care for people with intellectual or developmental disabilities or IDD. Matthew had a condition calledThat day, staff at the ICF told Anna that Matthew was healthy and eating well. Five days later, he was sent to the emergency room due to severe dehydration and constipation. He was there for 38 days.

However, with the larger ICF facility losing monetary support, she knew the next best option would be to transition him to a smaller ICF.Jamie Lemon is also nervous about leaving her son in the hands of others. Lemon is the mother of two autistic teenagers — 16-year-old Wyatt and 17-year-old Caleb. After spending a year on a waiting list, Caleb was placed in a group home in Gilbert, Ariz., due to his physical aggression.

"We just see so much evidence of what an inclusive and engaged life can be like that we will always encourage people to explore that." While Lemon and Smith found a housing arrangement that works for their loved ones, both worry about the potential for abuse or neglect without their constant supervision.

"Since the beginning of the organization back in the early 1950s, there's been a strong emphasis on moving people out of institutions — whatever can help individuals become more integrated into their communities, more included in the lives of their communities," says Meyers. "We just see so much evidence of what an inclusive and engaged life can be like that we will always encourage people to explore that.

According to O'Neal, the problem with many group homes is that even if abuse occurs, and staff are held responsible or even charged with a crime, the home itself is unlikely to close.

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