'The hidden condition that means even a surprise could be deadly for our daughter'
The youngster loves nothing more than spending time with her loved ones and competing in dance competitions.
A sudden rush of adrenaline could have devastating consequences for Ellie-May – such as the heart’s response to exercise or unexpected shock. “She’s my absolute world. I adore her with every fibre of my being. I love her to piece and I’d do anything to protect her. The scary thing is, there’s not one thing I can do to stop this happening.”
But despite taking medication, the youngster is still at risk of collapsing and going into cardiac arrest at any time. “If you didn’t know she had a heart condition, you wouldn’t have a clue. I’ve had so many people come up to me and say they never even knew she had a heart condition and that it was that serious.Ellie-May was recently able to go on her end of year school trip thanks to a local charity. Lagan's Foundation loaned the schoolgirl a defibrillator in case she went into cardiac arrest while away.
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