Josh Burton, a huge fan of dinosaurs, was given a behind-the-scenes tour of the Field Museum following his surgery at Northwestern Medicine.
Field Museum dinosaur curator Jingmai O’Connor, left, gives Josh Burton a close look at the skull of the Tyrannosaurus rex Sue at the Field Museum in Chicago on Sept. 20, 2023. Burton has had two double lung transplants. He is a big fan of the museum and of dinosaurs so he was granted special access, including seeing Sue outside its protective case.
But the following year, his mother entered a room to find a team of doctors, an empty chair, a box of Kleenex and the information that her son’s donated lungs were no longer working in his body.Another double lung transplant, called a retransplant when it’s the second time, was his only option. But hospital after hospital said they couldn’t do it.
“We think of ourselves as a destination of hope,” he said. “We want to take patients who have low odds of survival and make them very high odds of survival.” Because it is impossible to know until inspecting the actual organs if they will work for a transplant, the family said that year of waiting became a roller coaster of finding out lungs were available, specialists going to examine them and returning with the news that, again, it wouldn’t work. This can happen because of pneumonia or other undetected illnesses in the donor lungs.For three weeks, Kelly remembers, there were no offers of lungs.
For the first time in months, Kelly saw his chest move. Up and down, up and down. Before he went into the operating room, she said, “There was no movement. His lungs were doing nothing.”Before the surgery, Josh said, “The only thing that went through my mind was I didn’t want to die. I didn’t know how to drive; I didn’t go to high school, or even prom.
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