Since its discovery in 1910, sickle cell disease has been considered a death sentence for those that inherited it. But over the years, dedicated pediatric programs and research initiatives have greatly improved patient care and life expectancy.
or the stem cell cures. It's like, we haven't built a dock and the boat that's coming for our patients is tiny."Patients are under medical care for their entire lifetimes. With more people living longer with sickle cell disease than ever before, patients will need to transition from well-established pediatric sickle cell programs to adult programs. The latter of which are sparse and lack the expertise and financial safety nets.
With many sickle cell programs lacking specific transition programs, providers do their best to communicate with one another and prepare patients for their transition well ahead of time. Because North Carolina is a large state, it can be challenging for patients to quickly access the care they require; the major sickle cell programs are in the Triangle region.
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