'I’ve spent a lot of time hiding. But I finally got to a point where I decided I was done. I was done feeling ugly. I was done feeling dirty all the time.' One woman opens up about her experience. PlaquePsoriasisAwarenessMonth
For me, one of the hardest things about psoriasis is that people can see it. And sometimes they have really odd reactions to it. When my disease is active, some people tell me I need to use a certain soap or shampoo, as if I don’t bathe. Psoriatic disease of the joints is the exact opposite. You can’t see it. People will tell me it doesn’t look like there’s anything wrong with me.I’ve felt like I was at war with myself. I’ve had my thumb joints replaced because of psoriatic disease.
My friends said my past actions made a lot of sense when I finally opened up about my condition. That was such a relief. I started to feel better about myself. Plus, I started to feel better physically. I didn’t have as much itching and burning because I didn’t have as much stress.Finding the New Me That’s when I became a “One to One” mentor for the National Psoriasis Foundation. It’s a program that pairs people like me -- someone who’s lived with psoriasis for years -- with someone who’s just been diagnosed. It’s my new passion. I want to make sure that the next person’s road isn’t quite as hard as mine was.
Don’t get me wrong. My husband is a fantastic cheerleader. But to sit with somebody who actually has it, who actually knows what I’m talking about, is the most amazing feeling in the world.You may think that your diagnosis is the end, but it’s actually the beginning. Now you know what’s causing your symptoms. You’ll find a medicine that works, and you’ll feel better. You’ll have a life again. You might not have the life you used to have, but you can have one that’s meaningful and productive.
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