Clinicians often don't have adequate answers for long COVID patients, so they search for cures on their own dime. This can add to financial burdens.
Patient dissatisfaction with medical treatment for long COVID is spurring use of alternative treatments.It is an example of how lack of trust in the medical establishment can lead people to alternative treatments.in January of 2020 and was diagnosed with long COVID a year later. His journey in search of recovery has been recordedhe had originally started to document his frequent running with a child with special needs through Team Hoyt San Diego.
While he has a team of doctors in Denver, Ty has sought care widely throughout the United States. He has flown for appointments at Mayo Clinic and RTHM, a progressive clinic in Oregon that uses research, testing, andto care for people suffering from long COVID and ME/CFS. He’s traveled also to Boston to participate in a new study exploring his cognitive issues through a brain study at Mass General Hospital and Harvard University.
Ty says that one of the primary blocks to his recovery is “gaslighters and deniers” in the medical profession. This is no surprise. Long COVID patients often describe frustration because their clinicians don’t believe their symptoms are real. Ja’Mia Hewitt, a COVID long-hauler and nurse, said it this way: “This health care system is like pulling teeth,” and described how most clinicians need to be “more proactive versus reactive for patient care” for long COVID patients.
Ty estimates his medical expenses over the past three and a half years are over $100,000, and when he considers what he’s paid in medical premiums—especially when he had to move to insurance with high premiums—he has spent more than $46,000. Along the way, he has also spent another $11,000 on alternative therapies . He’s also spent more than $3,000 on additional tests not covered by insurance.age, and then Social Security Disability . His wife is a small business owner, which helped too.
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