'They first realised something was wrong when they did the heel prick test..'
Duane McCreadie's son Xander received the diagnosis when he was six-months-old after the family were told there was something wrong shortly after birth.
"There was no warning. The doctor was coming to the house in an hour's time. I just jumped into the car from work in Belfast and drove home to hear from the horses mouth what was happening. "At the moment he's doing well, looks really healthy and has put on good weight, he could be a rugby player, he's really well built. That's also to do with a lot of the physio that we have to do with him.
Although the family know Kaftrio will not benefit Xander, the Donaghadee dad said: “No parent wants to be in this position however my wife Deborah and I recognise that the best action we can take is to raise funds to support the work of scientists and researchers who have made finding a cure for ‘the other 10%’ their life’s work. We believe that funding this research will mean that one day Xander, and all babies born with CF, will live a life entirely without limits.
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