Our thoughts and prayers are with NBCNews Chief Foreign Correspondent RichardEngel after the death of his 6-year-old son, Henry.
"MECP2 mutations cause Rett syndrome, a disorder that typically affects girls after their first birthday, robbing them of learned skills and leaving them with cognitive deficits, loss of speech, and a variety of motor difficulties," the Texas Children's Hospital page explains.
The Engel family brought Henry to the hospital's Duncan Neurological Research Institute in 2018 to seek additional answers. The Duncan NRI's Founding Director Dr. Huda Zoghbi studied Henry's mutation closely. “Henry was special in so many ways. His loving and endearing smile, and the way he connected with his eyes, stole my heart from the time I met him. His quiet fight against this terrible disease was incredible,"According to Zoghbi, Henry left a lasting impression on the entire Duncan NRI team and their ongoing Rett research.
"We will continue to push as hard as possible to develop treatments. This is how we will honor his life,” the doctor continued.
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