Brave sufferers talk to us
Long Covid sufferers in Lancashire have called for better co-ordination of their care and more compassion from society as they fight a daily battle against a condition that has blighted their lives.
Not long after her daughter turned one – and at the height of the first Omicron wave in January 2022, the new mum caught Covid. Her recovery from the initial infection was far from complete when she returned to work, leaving her particularly vulnerable to the effects of contracting it again – which she unfortunately did just five months later, after a single day back in her hospital job.
“I actually don’t remember much of my daughter being a toddler – and I’m never going to get that back. Plus, we didn’t go and do half of what I’d love to have been able to do with her. My husband has been a Godsend – he’s a daddy and has also been my carer at times, when I have been unable . “People want to have normality and ignore problems unless it affects them directly – and that’s normal human behaviour. But that’s why I think it’s really important to have the awareness day for Long Covid. Just remember that everyone’s got their own story and everyone is struggling with their own stuff – so if you see someone struggling, help. And just be kind.
Melanie says the main thing she feels has been missing from her care is a single doctor overseeing it. NHS England commissioning guidance for post-Covid services states that they should be centred around multi-disciplinary teams , which bring together specialist medical, nursing and other health professionals, with “clinical leadership from a doctor with the relevant skills and experience”.
"For me, it’s the fatigue – if I do too much, my body just crashes . There is also muscle pain, joint pain, dizziness and a lot of cognitive – brain fog being the main one and concentration . Last year, I did have a big crash everything caught up me – my mobility and cognitive function have definitely plummeted since.
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