'I'm making the most of the time I have left with my boy after shock diagnosis'
is an ultra-rare, life-limiting condition that an estimated 100-150 people in the UK are currently living with.
Symptoms of the incurable condition include blindness, loss of speech and loss of control of movement.He hasn't said mummy in quite a while, but I heard him say it the other day, clear as dayIt means children with the disease forget everything they have learned in their short life. "He's deteriorated in terms of knowing colours and things, but we're hoping he'll be able to regain them after treatment."At the moment, he's lost his mobility. He can't walk on his own or stand unaided, and he wants to run but he can't."
"Now we go down to Great Ormond Street every fortnight for him to have a brain infusion, and hopefully after six to 12 months his symptoms will level out, but it won't stop the blindness.”
Brasil Últimas Notícias, Brasil Manchetes
Similar News:Você também pode ler notícias semelhantes a esta que coletamos de outras fontes de notícias.
LadBaby Mum | LadBaby Mum Clothing | In The StyleCheck out the gorge Abigail styling her fave Ladbaby Mum Mother's Day jumpers 🤩💫 We're obsessing over both these looks 🙌 Shop this style and more on our site or app now 📲
Consulte Mais informação »
Mum left homeless with her 4 kids after being evicted from house blames AirbnbsTrudy Lincoln and her family, who had lived in Hartland, North Devon, have been left 'sofa-surfing' - and the mum-of-four said second home owners are to blame
Consulte Mais informação »
Mum 'disgusted' after 'finding maggot wriggling in baby's Cow & Gate formula'Kim Mitchell, 23, claims to have bought a tub of Cow & Gate milk formula from a West London Boots earlier this month, and had already used it to feed her baby son, Lochlan, before finding the 'maggot or worm' later that day
Consulte Mais informação »
Funny gifts for Mother's Day 2022: Hilarious presents to make mum smileMother's Day is a time to show how much you love your mum, which can be done in the form of joke gifts or presents to reminisce over funny memories shared.
Consulte Mais informação »
Debbie Leitch: Jail term for mum who starved daughter reviewedElaine Clarke, 49, admitted gross negligence manslaughter of Debbie Leitch, who had Down's syndrome.
Consulte Mais informação »
I'm a mum-of-nine, work & live in a 7-bed house...it's easy to keep spotlessA MUM-OF-NINE who lives in a seven-bed house has revealed that she finds it “easy” to keep it “spotless” and doesn’t understand why others can’t do the same. Lou…
Consulte Mais informação »