'My daughter never wanted her condition to rule her life - but she was tragically taken from me'
An inspiring father who lost his daughter when she was only 27 is taking on the London Marathon in her memory this weekend.
His daughters seizures were unpredictable and would often leave her feeling exhausted or cause her physical injury. However, Carla was determined not to let the condition rule her life.“Carla was born with epilepsy and had her first seizure within a few weeks. Although she was on medication all her life, her seizures were unpredictable and no specific seizure trigger was ever identified.
“Her employers and friends understood her condition. However, one of her biggest challenges was navigating the London Underground as epilepsy tended to affect her spatial awareness," he added, "She got lost a lot! As a teenager, she wasn’t happy to find out that alcohol would adversely affect her meds but in typical Carla fashion, she compromised and drank moderately.
“Raising money for Epilepsy Action is hugely important to us as the charity helped Carla so much. She used the Epilepsy Action Helpline a lot, particularly at university. The helpline was instrumental in helping Carla face social dilemmas, such as ‘How do I tell my boyfriend about my condition?’ and ‘How do I speak to my employer about epilepsy?’ They provided great practical advice that was not always forthcoming from a GP or even the neuro-specialists.
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