'Only 1 in 100,000 people in the U.S. have reportedly been diagnosed with Erythromelalgia—or 'Man on Fire Syndrome.' 'I feel like I’m burning alive. It's hard for people to believe me.' 📝 JeBanach
. There are stories of people who want to amputate their own limbs because of the unbearable severity of their pain or even worse—to end their own life. And there is currently no cure.
The subject that we talk about most often, though, is the shocking level of misunderstanding that we face on a regular basis. We are like aliens on a faraway planet. It is impossible for our family members, our friends, our therapists, and even our healthcare providers to understand what a life with EM is. And for those who are not close to us, it is completely unimaginable.
Chronically ill people need to be able to tell their stories—and to be believed. Along with many others living with such curious conditions, I have witnessed a perpetual, fundamental, cultural misunderstanding about why people like myself tell stories about our lives with these conditions. It isn’t to garner sympathy or to complain. It isn’t to offer one’s self up as a figure of inspiration.
Brasil Últimas Notícias, Brasil Manchetes
Similar News:Você também pode ler notícias semelhantes a esta que coletamos de outras fontes de notícias.
Vietnam’s last working submarine cable glitches outPhở no! Vietnam's last working submarine cable glitches out
Consulte Mais informação »
Newcastle fans feel targeted by alcohol ban on trains as Man United fans allowed to drinkNewcastle supporters are outraged by an alcohol ban on trains taking them home after the Carabao Cup final against Manchester United. Eddie Howe’s side face the Red Devils at Wembley Stadium …
Consulte Mais informação »
Hero water operative who rescued children from fire nominated for bravery awardHero water operative who rescued children from burning building nominated for award for his bravery
Consulte Mais informação »
Matalan shoppers praise pattern of 'classy' £27 dress'I saw this dress on Lorraine and immediately bought it online.' 🤩 aff
Consulte Mais informação »
'I live in fear inside my flat - but the housing agency says there's no issue''It's cold, it's damp, I feel ashamed and embarrassed and it's just making me feel more and more isolated'
Consulte Mais informação »