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At 5 years old, Victoria Arlen knew exactly what she wanted to do with her life. She drew a picture of herself in her swimming cap wearing an Olympic gold medal and matter-of-factly told her parents she was going to be an Olympian. Flash forward nearly 20 years, and Victoria has knocked that title off her bucket list and then some. Topping her impressive résumé along with gold medalist is TV show host, motivational speaker, model, and now clothing designer, thanks to her new.
In April 2006, Victoria's health took a turn for the worst. She remembers barely being able to get off the couch, barely being able to lift her head. As a result, doctors removed her appendix, which, in hindsight, is what"unlocked the tornado.""Within two weeks, I had lost a bunch of weight and then my legs started to drag," Victoria said."It was a three-month period where every switch in my body, like a circuit breaker, was just being shut off.
By the time doctors figured out what was going on, there was nothing they could do."We got the first diagnosis of transverse myelitis in 2009 but we didn't get the final acute disseminated encephalomyelitis until 2013," Victoria explained."Doctors missed the crucial treatment window, which is really the first two weeks to a month." Acute disseminated encephalomyelitis is a condition that affects the brain and spinal cord, which explains her paralysis and vegetative state.
Fortunately, Victoria comes from a family that doesn't back down."My parents were like, 'Do whatever you need to do to stabilize her, and we're going to take care of her ourselves,'" she said.
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