The technology allowing patients to grab their own data — application programming interfaces, or APIs — is already used in e-commerce.
only about 0.7 percent of patients who log into patient portals where they can access records wind up sending them to their smartphones.
Expanding access to patient data has been a focus of the Trump administration, embodied in the MyHealthEData initiative led by CMS and the White House Office of American Innovation. At the 2018 industry conference in Las Vegas, senior adviser Jared KushnerThe 21st Century Cures Act, signed in 2016, banned the practice of information blocking, or interfering with the transfer of health data.
The government efforts come as companies like Apple are beefing up their health tools. The tech giant launched its health records viewer in 2018, integrating with traditional health records vendors like Epic so that patients could download their data to their phones.led by the University of California San Francisco aims to establish a similar capability for Android users.
But patients are "just not there yet," said Julia Adler-Milstein, the lead author of the JAMA study. "Why would I put more sensitive data on my phone ... unless there's really value for doing so?" Many patients don't even know about API access. "I don’t think we’ve done a good job of telling them,” she said.
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