As of 2023, dementia affects 6.7M+ Americans, incl. unpaid caregivers. The Guiding an Improved Dementia Experience (GUIDE) Model is designed to address caregiver burden by requiring health care providers to offer caregivers training & support services:
The GUIDE Model will focus on dementia care management and aims to improve quality of life for people living with dementia, reduce strain on their unpaid caregivers, and enable people living with dementia to remain in their homes and communities. It will achieve these goals through a comprehensive package of care coordination and care management, caregiver education and support, and respite services.
The GUIDE Model will offer a standard approach to care, including 24/7 access to a support line, as well as caregiver training, education, and support services. This standard approach will allow people living with dementia to remain safely in their homes for longer by preventing or delaying nursing home placement and improve quality of life for both people living with dementia and their unpaid caregivers.
Through the GUIDE Model, CMS will test an alternative payment for participants that deliver key supportive services to people with dementia, including comprehensive, person-centered assessments and care plans, care coordination, and 24/7 access to a support line.
In order to have sufficient model participation and improve the recruitment of diverse beneficiaries, CMS will also recruit organizations that do not currently offer comprehensive dementia care or have prior experience with alternative payment models. CMS will support model participation for these organizations by providing technical assistance and learning support as well as a pre-implementation year to prepare for model participation.
Dementia imposes significant financial, emotional, and logistical burdens on families, which are often exacerbated for certain racial and ethnic groups. Black and Hispanic populations have a higher prevalence of dementia, but they also are less likely to receive a timely diagnosis, have more unmet needs, are more likely to experience high caregiving demands, and spend a higher share of their family assets on dementia care.
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