At its conference in Bilbao, the European Economic and Social Committee (EESC) urged the European Union to launch a European action plan stepping up cooperation between national health systems.
Oct 14 2023Reviewed by Lily Ramsey, LLM The main goal: to provide better diagnoses, treatment and care to patients with rare diseases.
The Committee urges the EU to launch a European action plan to step up European cooperation between health systems to fight rare diseases and give patients access to the most advanced knowledge and treatment wherever they are in the European Union. The complexity of these diseases and the scarcity of data and knowledge make it difficult for patients, family members and healthcare professionals to receive a timely diagnosis, appropriate health and social care and any available treatment.
The EESC has been supporting a comprehensive EU approach that takes into account all the needs of people living with rare diseases since 2009. In 2022, the Committee issued an opinion which reiterates this request and calls for EU solutions to mitigate the everyday impact of rare diseases in both personal and professional life.
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