“Disabled women seem to exist in a world where sexuality is either denied to us even when we enthusiastically call for it or bestowed upon us even when we vehemently don’t want it.” via WMC's the_fbomb
The community of young women who speak out about life with a disability — increasingly on TikTok, but also through Facebook, Instagram, and the hashtag #NEISVoid on Twitter — has provided a sense of support and strength to people on many different disability journeys, including long COVID patients. It can be transformative and empowering to pass on wisdom and hear collective experiences.
.” I was 12 when my congenital heart condition and dysautonomia accelerated, and while other seventh and eighth graders were having their first kisses, I was stifling my annoyance at a staffer in the pediatric cardiac wing giving me a Hannah Montana doll after my catheter ablation. I had open-heart surgery shortly after my 21st birthday. The scar is 10 inches long and goes directly between my breasts. I have extreme hypertrophic scarring, as do many people with connective tissue disorders like Ehlers-Danlos syndrome. My scars don’t fade like they’re supposed to: They’re wide, uneven, and purple-red, which makes them impossible to hide. I was horrified when people became infatuated with my sternal scar whenever it was visible in public.
While writing this piece, I talked to other disabled young women and femmes on social media. Many of them had similar frustrations and experiences with men harassing them. “I’ve noticed a weird trend where they’ll make a comment, follow me, then start getting mad at me if they hear I’m questioning a man’s authority, i.e.
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