A buyers club in Britain is importing a generic version of Orkambi, a drug for cystic fibrosis, from Argentina
transmission, import the drug. Patients have also used clubs to buy drugs for cancer and pulmonary fibrosis.
In all cases, the priority is to access treatment. Nina White, whose seven-year-old daughter has cystic fibrosis and is a member of the buyers club, currently pays Vertex’s list price. The treatment has made a big difference. Her daughter has more of an appetite and is no longer so tired that she has to skip friends’ parties. “If I had to sell my house [to buy the drug], I would sell my house,” she says.
Pharmaceutical firms have warned that the trend weakens the incentive to invest in research; Vertex says it has invested $7bn in developing medicines for cystic fibrosis. Just Treatment is now urging the government to use a “crown use” licence to override Vertex’s patent. The government has so far resisted, partly because of the signal it would send about the security of patents in Britain.
But in a debate in Parliament on June 10th Seema Kennedy, a health minister, said that because of the length of negotiations she had a “moral obligation” to consider such a move. “Vertex has had a strong negotiating position precisely because of their monopoly,” notes Suerie Moon of the Graduate Institute of Geneva, meaning the firm now has a much greater incentive to cut its price. Thanks to the buyers club the cost of treatment has already fallen significantly.
Brasil Últimas Notícias, Brasil Manchetes
Similar News:Você também pode ler notícias semelhantes a esta que coletamos de outras fontes de notícias.
California regulators urge marijuana buyers to seek out legal shopsThe 'Get weedwise' campaign sends 'a clear message to unlicensed businesses that they need to get licensed or shut down,' said the state's cannabis czar.
Consulte Mais informação »
'Michael Jackson drug' still prompts curiosity from patientsIt remains the most widely used anesthetic in U.S. hospitals, but many patients still remember propofol as the drug that killed Michael Jackson. Most are no longer afraid of it, doctors say,...
Consulte Mais informação »
You Can Get a Floating Picnic Table at Sam’s Club for Snacks on the WaterIt holds up to five adults!
Consulte Mais informação »
Cardi B Indicted On Felony Assault Charges Following Strip Club Brawl: ReportsCardi B reportedly indicted on felony assault charges following strip club brawl
Consulte Mais informação »
Cardi B Indicted on Assault Charges For Strip Club AttackIn October Cardi B was arrested after two women, known as Jade and her sister Baddie Gi, alleged the rapper had attacked them at the strip club they work at last August. Cardi was charged with misdemeanor reckless endangerment and assault, USA Today reported at the time, but TMZ reports that a grand jury indicted the rapper on multiple charges Friday, including two counts of felony attempted assault with intent to cause physical injury.
Consulte Mais informação »