Hear what it’s like to cope with aTTP, a rare life-threatening blood disorder.
, which filtered out the unhealthy plasma from white and red blood cells in my blood, and then returned my cells with healthy donor plasma.: It turned out I was allergic to the plasma. I was given heavy medication to counteract my reaction and wound up spending 10 days in the hospital. My physician informed me when I left the hospital that I had to stop breastfeeding my daughter and that it would be extremely risky to have more children. It was incredibly hard to hear that.
One of the hardest things about having aTTP is that it's so random and can hit at any time. Without warning or notice, you can experience another aTTP episode that disrupts your life. My second aTTP episode occurred three years later, in 2019, the week we were going to Mexico for a family vacation.
For me, each episode has required a minimum of five to seven days of inpatient care at the hospital to stabilize my platelets and receive treatment. And this time, my children — now 5 and 7 — couldn't visit me because of the Covid-19 pandemic, which was really tough. With each episode, there's a risk of increased complications such as major organ damage. Since my diagnosis five years ago, I'm more fatigued, don't have as much energy, have chronic pain and occasionally experience short-term memory loss.
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