A local mom says her son’s cerebral-cortical visual impairment went undiagnosed by experts for years, until she took him to Watertown’s Perkins School for the Blind. Perkins School for the Blind is working to spread awareness for what it calls a hidden epidemic: Cerebral/Cortical Visual Impairment (CVI). Senior director of the CVI Center at Perkins, Ilse Willems, says that CVI…
"He would map a room, kind of run around a room to check out the space, he would hold things close to his eye. He would do light gazing. There seemed to be depth perception issues," explained Zuleida Herba, his mother."At one point I even got kicked out of a doctor’s office because the doctor said that’s not a vision issue and dismissed us and moved on, so as you can imagine as a parent I got tired of not having answers," she said.
“Usually, it happens around birth... some kind of asphyxia or a stroke at birth, meningitis,” she said. “It can happen later in life if there is any kind of trauma that happened like any big car accident.” She said people can have 2020 vision and a perfect MRI and still have CVI, which is why a CVI-specific evaluation can help.
Perkins School for the Blind is holding its third annual Everybody In! Walk/Move for Perkins this Saturday on its campus in Watertown to raise awareness and support for kids with disabilities.
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