💬 A common brain disorder stopped me walking and using my arms - but medics often miss it
Astonishingly, Tom’s case is not unusual, as FND is classed as the second most common reason for consulting a neurologist after severe migraine, but patients are frequently dismissed by doctors and only given information on support groups for psychological issues.
Shockingly, most of these will not receive any treatment, due to a lack of specialist training among neurologists, lack of resources in some areas and poor funding for services. Despite research confirming FND to be a complex brain network disorder, there is currently no national service for patients once diagnosed in the NHS, although it’s more common than Parkinson’s disease and multiple sclerosis .
“There is some evidence that childhood trauma could be a link to the condition appearing in later life, but this is only true in a number of cases, and many other patients may not have experienced any trauma in their early lives. The incidence is higher in women than men, with the split being around 70-30 in favour of women.
The guidance for clinicians says: “The long-term outlook for patients is poor with most remaining with long-term disabling symptoms. A successful pathway for people with FND requires a range of services available into which people can be referred depending on need and complexity.”
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