4 Things the Chronically Ill Wish Others Understood

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4 Things the Chronically Ill Wish Others Understood
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How to better support a friend with a chronic illness, by toni_bernhard

) is that the people in our lives don’t understand what we’re going through. Our culture does a poor job of educating people about health challenges. Here are four things we wish others understood:When I contracted a viral infection in 2001 and failed to recover , I realized that I’d taken up residence in a parallel universe I hadn’t known existed: the invisible world of the chronically ill. The reason it’s invisible is that most of us who live there look the same as those around us.

This is why keeping emotional stress to a minimum is so important for the chronically ill — important, but often impossible. Why? Because we face the same stresses that healthy people do,This raises a dilemma that the chronically ill face all the time. If we talk about our health, we worry that others might not want to hear about it. A few years ago, a woman wrote to me about a chronically ill friend whom she loves and tries to support, but who does nothing but talk about her medical problems.

All this is by way of illustrating that it would be a tremendous help to the chronically ill if you would let them know, by how you respond in conversation, how much you’d like to know about their health issues.The ability to be spontaneous is one of life’s joys but it may not be possible for those who are chronically ill. Again, I’ll illustrate from my own life. I can’t get through the day without one, sometimes two, naps. This means that if someone calls at 11 a.m.

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